The Rare Genomics Institute (RGI) is an international non-profit that gives rare disease patients access to cutting-edge research technologies. It has recently announced the launch of the newest addition to its Amplify Hope Initiative.
The program, which is a 30-Day Crowdfunding Bootcamp, will teach families with children suffering from rare illnesses to effectively raise funds for vital genetic sequencing treatments.
Through training, these families will be taught how to make better use of their available fundraising platforms, plot campaigns and leverage social media more effectively. Top fundraising experts will be conducting free webinars on these topics as well as offering remote support to participants.
“[The RGI] has helped many affected families by putting them in touch with the World’s top rare disease and genomics specialists,” said Jimmy Lin, president of the organization. “Proper diagnosis requires sophisticated genome sequencing and other research – the reality is that such projects are very costly. I am excited to see how the Amplify Hope Initiative will help families raise much-needed funds to uncover the cause of their child’s illness.”
For more information about the Amplify Hope Initiative, visit amplifyhope.raregenomics.org
